When I first became involved with the support group, it was uncommon to hear
that family members understood or were even interested in what we were experiencing
with Fibromyalgia. It was far more common to hear that spouses, companions,
and other family members turned their backs and expected us to ignore our pain
and fatigue and go on with a “normal life.”
While I am sure that situation is still prevalent, I perceive the tide is turning.
In the beginning “couples” did not attend our group meetings, only
individuals suffering alone and striving alone to understand what was happening
to their body. In the past year or so, I have noticed that it is more common
to see “couples” at our meetings with a smattering of individuals.
That pleases me. It is an indication that family members are taking Fibro seriously
and making an effort to understand.
I think that you, the members of our support group, have also helped to make
the public aware of Fibromyalgia. I get the impression that more and more of
us are talking more openly about Fibro and that is GOOD! The media attention
given to Fibromyalgia in the past couple of years has helped to change attitudes.
It helps to educate the public in general. As the public learns more about the
illness, they become more accepting.
We need not be ashamed or afraid to talk about Fibro. It is a real, physical
condition. The latest research provides more evidence that Fibro is a problem
with the central nervous system, a system that for some reason is not functioning
correctly. It is our responsibility to educate our families and friends and
the public in general. We do that not by complaining, but by talking openly
and knowledgeably about our illness.
